NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS

On March 15-16, leading ME/CFS expert clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The Open Medicine Foundation was in attendance and has made available a document drafted by the participants that should prove indispensable to clinicians and patients alike:

The basics of diagnosis and management of ME/CFS.

Source: NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS | Open Medicine Foundation

Third Annual Working Group Meeting on the Molecular Basis of ME/CFS @ Stanford

Director of Scientific and Medical Outreach, Jaime Seltzer of #MEAction, gave a talk on Wednesday during a session on “Big Data and ME/CFS” at Stanford University as part of the Third Annual Working Group Meeting on the Molecular Basis of ME/CFS sponsored by the Open Medicine Foundation.

On Saturday, September 7th, from 9 A.M. PDT the proceedings will be open to the public via live stream here.

For additional highlights of the conference proceedings please follow this twitter link.

Update: Day three ended with dinner for the scientists and the OMF at Ron Davis and Janet Dafoe’s home.

Source: Patient Registry is the Key to Achieving Big Data for M.E. – #MEAction

The Energy Envelope Theory: An Effective Self-Management Tool for ME/CFS

It is simply a self-management tool that can help you better cope with living with ME/CFS. Utilizing the energy envelope will enable you to live a more balanced life by helping to prevent relapses. As an added bonus, you may find that over time your available energy supply will gradually increase, giving you a bigger energy envelope to work with.

Source: The Energy Envelope Theory: An Effective Self-Management Tool for ME/CFS – Prohealth

Crowdfunding Project to Send ME/CFS Manga to Public Health Organizations in Japan

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The purpose of this project is to raise awareness of ME/CFS in Japan, by sending out copies of the manga “One Day Suddenly I Got Chronic Fatigue Syndrome” to health officials. The organizers in collaboration with the author of the manga, Ms. Yuari, need to raise 2 million yen to be successful. Various rewards are being offered to supports, such as clear files and copies of the manga.

Update: On 08-16-2019 funding was successful!

Source: Let’s deliver [Yurari’s book / new issue of chronic fatigue syndrome] to public health centers and related organizations all over the country! -CAMPFIRE (Campfire)