Director of Scientific and Medical Outreach, Jaime Seltzer of #MEAction, gave a talk on Wednesday during a session on “Big Data and ME/CFS” at Stanford University as part of the Third Annual Working Group Meeting on the Molecular Basis of ME/CFS sponsored by the Open Medicine Foundation.
On Saturday, September 7th, from 9 A.M. PDT the proceedings will be open to the public via live stream here.
For additional highlights of the conference proceedings please follow this twitter link.
Update: Day three ended with dinner for the scientists and the OMF at Ron Davis and Janet Dafoe’s home.
Recent studies continue to point to inflammation as being a product of stress. This article explores connecting trauma and chronic illness. You will also find links to related articles.
Patients moved from all over the country to Incline Village, Nevada, for an experimental drug. Then the drug disappeared.
It is simply a self-management tool that can help you better cope with living with ME/CFS. Utilizing the energy envelope will enable you to live a more balanced life by helping to prevent relapses. As an added bonus, you may find that over time your available energy supply will gradually increase, giving you a bigger energy envelope to work with.
After a promising small trial of Cortene’s new experimental drug CT38, funds are being raised for a phase 2 trial. CT38 is believed to work by effectively reducing the amount of cortisol released by the adrenal glands through upregulation of stress receptors.
A unique and up-close opportunity to learn from and interact with these world-class scientists. Visit the link below for official details and sign up for the live stream of the event on Saturday, September 7th, 2019. The agenda is available here.
Source: Series written by Jennifer Brea – Medium
Jen Brea’s groundbreaking film Unrest brought much needed critical attention to ME/CFS. In a series of articles she writes about her path to recovery and a whole lot more.
Discover how to prevent post-exertional malaise by learning to use a heart rate monitor. This article is a must read for those interested in pacing.
The purpose of this project is to raise awareness of ME/CFS in Japan, by sending out copies of the manga “One Day Suddenly I Got Chronic Fatigue Syndrome” to health officials. The organizers in collaboration with the author of the manga, Ms. Yuari, need to raise 2 million yen to be successful. Various rewards are being offered to supports, such as clear files and copies of the manga.
Update: On 08-16-2019 funding was successful!