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Wisdom 4 ME |
ME/CFS News & Advocacy |
“This research gives us additional evidence for the role of the immune system in ME/CFS and may provide important clues to help us understand the mechanisms underlying this devastating disease,” said Vicky Whittemore, Ph.D., program director at NIH’s National Institute of Neurological Disorders and Stroke (NINDS)
It’s been almost fifteen years since I was taken down by a mystery illness. These days I am functioning at about 80 percent of my physiological capacity – and that feels like remission to me. I manage my health by eating a mostly plant-based diet, exercise, stress reduction, some supplements, and daily dosing with a CBD-rich tincture, with occasional THC-rich cannabis at night.
Not everyone will go through these stages in the same way or in the same order that I have, but I’m confident that this list will sound familiar, both to those who are chronically ill and to those who care for them (if the former are fortunate enough to have the latter—I recognize that not everyone is).
Source: 5 Stages Experienced by Those with Chronic Illness | Psychology Today
Scientists at the University of Birmingham in collaboration with the University of Amsterdam have uncovered a possible explanation for the mental sluggishness that often accompanies illness.
Source: Link between inflammation and mental sluggishness shown in new study — ScienceDaily
In this video from early April Dr. Komaroff presents an ME/CFS summary to the NiH.
On the link below Dr. Anthony Komaroff shares a brief summary of the state of current ME/CFS research.
Researchers have discovered the pharmacological drug, Naltrexone, significantly restored the function of faulty receptors associated with myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome (ME/CFS). The study can be found here.
Source: Researchers discover potential therapeutic approach to treat chronic fatigue syndrome
There’s new evidence that mind-body interventions can help reduce pain in people who have been taking prescription opioids — and lead to reductions in the drug’s dose.
Source: Chronic Pain Eased With Meditation And Lower Doses Of Opioids : Shots – Health News : NPR
Marie-Josée Ménard, a teacher in Montreal, started experiencing symptoms of ME/CFS in 2010. At the time, her doctor concluded it was severe depression.
A network of Canadian scientists is trying to make up for lost time in the search for a standard diagnostic test and treatment for a debilitating, poorly understood disease that had long been dismissed as a psychological illness.
Source: After long-awaited recognition, serious research begins on chronic fatigue syndrome | CBC News
Hilda Bastian writes about the recent much anticipated change of conclusion to the Cochrane Review on Exercise and CFS.
Source: It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS | Absolutely Maybe
The Third Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by OMF, took place on September 7, 2019 at Stanford University. It brought together hundreds of researchers, clinicians, patients, caregivers, families, and advocates, and thousands more by livestream.