Navigating Public and Private Disability Insurance with ME/CFS (Update)

On Saturday, December 4th, David from the ME/CFS Phone Support Group will be co-hosting a Disability talk with Social Security Disability attorney Moselle Leland and Long-Term Private Disability and ERISA Attorney Andrew Kantor

This call will focus primarily on Social Security Disability for individuals with ME/CFS, as well as those with Long Haul Covid.

Saturday, December 4th, 6:30 PM – 8 PM Eastern
3:30 PM – 5 PM Pacific

U.S. Dial-In: (609) 746-1155; Access Code: 915110#

NIH VideoCast – Beyond the Symptom: The Biology of Fatigue

In September 2021 the NIH hosted a virtual workshop entitled Beyond the Symptom: Biology of Fatigue to bring together individuals who do research on fatigue, health care providers who see patients with fatigue, and individuals who have fatigue and patient advocates. This workshop was a joint workshop of the NIH Blueprint Neuroscience Research Program and the Sleep Research Society.

The entirety of the workshop can be streamed on the links below:

NIH VideoCast – Beyond the Symptom: The Biology of Fatigue (Day 1)

NIH VideoCast – Beyond the Symptom: The Biology of Fatigue (Day 2)

See ME – Awareness Day Music Video

‘See ME’ is a cover of the song Chasing Cars by Snow Patrol. The lyrics have been adjusted to reflect the lives of people suffering from ME/CFS. Many have become bed or housebound and live an isolated life between four walls. This song is to commemorate the millions missing who have disappeared from public life because of ME/CFS.

Created by Belgian artist Robin De Man and his son Seppe.

Using Art to Bring Visibility to ME/CFS

Christina Baltais created some artistic collages for May 12th ME/CFS awareness day.  Lives Capsized – “ME/CFS can strike any age, gender (most commonly affects women), and ethnicity (people of colour more likely to be affected). It can take down even the strongest and most robust in our communities. It’s a disease that does not discriminate; overturning the lives of millions and their families worldwide.”

Source: Using Art to Bring Visibility to Myalgic Encephalomyelitis | The Mighty

Solve ME Advocacy Week 2020 Congressional Education Video

Solve ME announced: “In our new digital format, we’ve created a video to replace our printed congressional educational materials. Share this video with your Representatives to inform them of important ME/CFS needs.”

Share this video with your local state representatives this week and help make a difference!

Bay Area CFS Group Meeting Virtually Every Third Sunday

The ME/CFS support group currently meets virtually every third Sunday of the month at 1PM.

This month’s topic: “Having ME/CFS can be an alienating and isolating experience even under the best conditions, and during these times of social distancing perhaps some of you may find value in checking out the Zoom meeting on Sunday.”

Those interested in attending can email: Monica Z cfsbayarea@gmail.com