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Wisdom 4 ME |
ME/CFS News & Advocacy |
It is simply a self-management tool that can help you better cope with living with ME/CFS. Utilizing the energy envelope will enable you to live a more balanced life by helping to prevent relapses. As an added bonus, you may find that over time your available energy supply will gradually increase, giving you a bigger energy envelope to work with.
Source: The Energy Envelope Theory: An Effective Self-Management Tool for ME/CFS – Prohealth
After a promising small trial of Cortene’s new experimental drug CT38, funds are being raised for a phase 2 trial. CT38 is believed to work by effectively reducing the amount of cortisol released by the adrenal glands through upregulation of stress receptors.
Source: Cortene to Move Forward on New Drug for Chronic Fatigue Syndrome (ME/CFS) – Health Rising
A unique and up-close opportunity to learn from and interact with these world-class scientists. Visit the link below for official details and sign up for the live stream of the event on Saturday, September 7th, 2019. The agenda is available here.
Source: Series written by Jennifer Brea – MediumJen Brea’s groundbreaking film Unrest brought much needed critical attention to ME/CFS. In a series of articles she writes about her path to recovery and a whole lot more.
Discover how to prevent post-exertional malaise by learning to use a heart rate monitor. This article is a must read for those interested in pacing.
Source: Using a Heart Rate Monitor To Prevent Post-Exertional Malaise in ME/CFS – Prohealth
The purpose of this project is to raise awareness of ME/CFS in Japan, by sending out copies of the manga “One Day Suddenly I Got Chronic Fatigue Syndrome” to health officials. The organizers in collaboration with the author of the manga, Ms. Yuari, need to raise 2 million yen to be successful. Various rewards are being offered to supports, such as clear files and copies of the manga.
Update: On 08-16-2019 funding was successful!
CNN profiles Stanford researcher Ron Davis and his efforts to help his son Whitney.
Source: Human Genome Project pioneer seeks cure for chronic fatigue syndrome to save his own son – CNN
Dr. Pradeep Chopra’s presentation discusses the causes of pain in EDS and how conditions such as POTS, MCAS, gastrointestinal and neurological systems play into it. We will also discuss the principles behind physiotherapy, as well as the pros and cons of different medications. The presentation slides are available in PDF format.
Linked here is an excellent article on Yasuhito Nakatomi and Jarred Younger’s research into neuroinflammation.
Cincinnati Children’s researchers made a fundamental discovery last year about the Mono Virus (EBV).