“If you have moderate or severe ME, it will take considerable effort and thorough preparation just to get out of your house to go see your doctor. This time, however, it was not just getting out of my house in northern Ibaraki, but I had to travel all the way to Tokyo to take the Eiken Grade 1 or the uppermost level of the English proficiency test in Japan”
For the past several years, Deborah Smith has taken a less active role in her family members’ lives due to a draining, mysterious biological disease. Smith suffers from myalgic encephalomyelitis chronic fatigue syndrome, an illness without a known cause or cure.
Singer-songwriter Alice Ella describes the joy of escaping in her new single Somewhere Else.
There’s new evidence that mind-body interventions can help reduce pain in people who have been taking prescription opioids — and lead to reductions in the drug’s dose.
Lena Dunham creates awareness of EDS on Instagram.
Ana shares her thoughts and feelings for those that do not not understand chronic illness.
Source: I’m Angry – Ana Harris Writes
Marie-Josée Ménard, a teacher in Montreal, started experiencing symptoms of ME/CFS in 2010. At the time, her doctor concluded it was severe depression.
A network of Canadian scientists is trying to make up for lost time in the search for a standard diagnostic test and treatment for a debilitating, poorly understood disease that had long been dismissed as a psychological illness.
“It is a tremendous injustice, as we all realize the imbalance of access to proper patient care for many patients with ME/CFS, especially African-Americans and Hispanics. The voices of these communities are unheard, ignored and neglected, and most people are unaware of what they have, and most doctors do not even acknowledge or treat the symptoms of this horrific disease,” Linda Tannenbaum said in a statement.
Belle and Sebastian have soundtracked a new film by Simon Bird. The band’s lead singer explains how ME first inspired him to write music.
Jody discusses how there just aren’t enough hours in the day for the person with ME/CFS and her concept of whitespace.