Patients Push Limits for Clues to ME/CFS at NIH

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The NIH study is focusing on people who came down with the disease after an infection, of any sort, within five years. That initial infection is long gone but maybe, the body’s normal reactions to illness went into a destructive tailspin. Nearly 500 patients have called seeking to enroll in NIH’s study that is putting a few dozen under the microscope, with a barrage of sophisticated tests few hospitals can offer under one roof. “The ignorance about the condition just vastly dwarfs what we know about it,” said Dr. Walter Koroshetz, director of NIH’s National Institute for Neurological Disorders and Stroke, which is leading the research.

Source: Patients push limits for clues to chronic fatigue syndrome – STAT

Serious Research Begins on Chronic Fatigue Syndrome in Canada

Marie-Josée Ménard, a teacher in Montreal, started experiencing symptoms of ME/CFS in 2010. At the time, her doctor concluded it was severe depression.

A network of Canadian scientists is trying to make up for lost time in the search for a standard diagnostic test and treatment for a debilitating, poorly understood disease that had long been dismissed as a psychological illness.

Source: After long-awaited recognition, serious research begins on chronic fatigue syndrome | CBC News

ME/CFS is Unreported in Minority Communities

“It is a tremendous injustice, as we all realize the imbalance of access to proper patient care for many patients with ME/CFS, especially African-Americans and Hispanics. The voices of these communities are unheard, ignored and neglected, and most people are unaware of what they have, and most doctors do not even acknowledge or treat the symptoms of this horrific disease,” Linda Tannenbaum said in a statement.

Source: Horrific Disease Ignored, Unreported in Minority Communities
– The White House Chronicle