For the past several years, Deborah Smith has taken a less active role in her family members’ lives due to a draining, mysterious biological disease. Smith suffers from myalgic encephalomyelitis chronic fatigue syndrome, an illness without a known cause or cure.
In this video from early April Dr. Komaroff presents an ME/CFS summary to the NiH.
On the link below Dr. Anthony Komaroff shares a brief summary of the state of current ME/CFS research.
Singer-songwriter Alice Ella describes the joy of escaping in her new single Somewhere Else.
Lena Dunham creates awareness of EDS on Instagram.
Ana shares her thoughts and feelings for those that do not not understand chronic illness.
Source: I’m Angry – Ana Harris Writes
Marie-Josée Ménard, a teacher in Montreal, started experiencing symptoms of ME/CFS in 2010. At the time, her doctor concluded it was severe depression.
A network of Canadian scientists is trying to make up for lost time in the search for a standard diagnostic test and treatment for a debilitating, poorly understood disease that had long been dismissed as a psychological illness.
“It is a tremendous injustice, as we all realize the imbalance of access to proper patient care for many patients with ME/CFS, especially African-Americans and Hispanics. The voices of these communities are unheard, ignored and neglected, and most people are unaware of what they have, and most doctors do not even acknowledge or treat the symptoms of this horrific disease,” Linda Tannenbaum said in a statement.
Hilda Bastian writes about the recent much anticipated change of conclusion to the Cochrane Review on Exercise and CFS.
The Third Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by OMF, took place on September 7, 2019 at Stanford University. It brought together hundreds of researchers, clinicians, patients, caregivers, families, and advocates, and thousands more by livestream.
Belle and Sebastian have soundtracked a new film by Simon Bird. The band’s lead singer explains how ME first inspired him to write music.