“Many patients are coming back to the clinic a year and a half after having COVID-19 and some of them are developing onset diabetes and heart disease. We lump all of these experiences under long COVID but it’s unlikely to be just one thing,” – Dr. Ziyad Al-Aliy
We assemble a panel of experts to discuss long COVID and ask listeners to share their experiences.
Nearly six years ago, I was a 20-year-old student on summer break from Saint Anselm College, enjoying an adventurous season of New England hikes and road races. Then, I contracted an infection that irreversibly altered the trajectory of my life.
On Saturday, December 4th, David from the ME/CFS Phone Support Group will be co-hosting a Disability talk with Social Security Disability attorney Moselle Leland and Long-Term Private Disability and ERISA Attorney Andrew Kantor
This call will focus primarily on Social Security Disability for individuals with ME/CFS, as well as those with Long Haul Covid.
Saturday, December 4th, 6:30 PM – 8 PM Eastern
3:30 PM – 5 PM Pacific
U.S. Dial-In: (609) 746-1155; Access Code: 915110#
In September 2021 the NIH hosted a virtual workshop entitled Beyond the Symptom: Biology of Fatigue to bring together individuals who do research on fatigue, health care providers who see patients with fatigue, and individuals who have fatigue and patient advocates. This workshop was a joint workshop of the NIH Blueprint Neuroscience Research Program and the Sleep Research Society.
The entirety of the workshop can be streamed on the links below:
The Biden administration moved Thursday to grant 323,000 people who are severely disabled automatic federal student loan forgiveness to the tune of $5.8 billion, setting the stage for reforms to a process that is widely criticized as cumbersome and onerous.
This article explores the connection between long Covid and possible co-infections such as EBV. In one study, over 73 percent of COVID-19 patients who were experiencing long Covid symptoms were also positive for EBV reactivation.
Children like Will Grogan continue to suffer from debilitating fatigue and extreme cognitive impairment long after a Covid-19 infection. Medical science is still no closer to a solution.
How renowned scientist Ron Davis is fighting to cure his son’s chronic fatigue syndrome, and why COVID patients may benefit.
Co-Principal Investigator Dr Luis Nacul, CureME Biobank, London School of Hygiene & Tropical Medicine, says: “Unlocking the genetic susceptibility to ME/CFS is a key part of understanding what causes ME/CFS and the disease mechanisms involved. This, in conjunction with other biomedical research into ME/CFS, should finally pave the way to better diagnosis and the development of specific treatments for this debilitating disease.”