Vaccination Nation: The not-so-long odds of long COVID | 1A

Centers for Disease Control and Prevention Director Dr. Rochelle Walensky answers is seen during a Senate Appropriations Subcommittee hearing in Washington, DC.

“Many patients are coming back to the clinic a year and a half after having COVID-19 and some of them are developing onset diabetes and heart disease. We lump all of these experiences under long COVID but it’s unlikely to be just one thing,” – Dr. Ziyad Al-Aliy

We assemble a panel of experts to discuss long COVID and ask listeners to share their experiences.

Source: Vaccination Nation: The not-so-long odds of long COVID | 1A

Navigating Public and Private Disability Insurance with ME/CFS (Update)

On Saturday, December 4th, David from the ME/CFS Phone Support Group will be co-hosting a Disability talk with Social Security Disability attorney Moselle Leland and Long-Term Private Disability and ERISA Attorney Andrew Kantor

This call will focus primarily on Social Security Disability for individuals with ME/CFS, as well as those with Long Haul Covid.

Saturday, December 4th, 6:30 PM – 8 PM Eastern
3:30 PM – 5 PM Pacific

U.S. Dial-In: (609) 746-1155; Access Code: 915110#

NIH VideoCast – Beyond the Symptom: The Biology of Fatigue

In September 2021 the NIH hosted a virtual workshop entitled Beyond the Symptom: Biology of Fatigue to bring together individuals who do research on fatigue, health care providers who see patients with fatigue, and individuals who have fatigue and patient advocates. This workshop was a joint workshop of the NIH Blueprint Neuroscience Research Program and the Sleep Research Society.

The entirety of the workshop can be streamed on the links below:

NIH VideoCast – Beyond the Symptom: The Biology of Fatigue (Day 1)

NIH VideoCast – Beyond the Symptom: The Biology of Fatigue (Day 2)

£3.2m Funding for DecodeME, the Largest Ever ME/CFS DNA Study

Co-Principal Investigator Dr Luis Nacul, CureME Biobank, London School of Hygiene & Tropical Medicine, says: “Unlocking the genetic susceptibility to ME/CFS is a key part of understanding what causes ME/CFS and the disease mechanisms involved. This, in conjunction with other biomedical research into ME/CFS, should finally pave the way to better diagnosis and the development of specific treatments for this debilitating disease.”

Source: Patients, scientists and advocates celebrate £3.2m funding for DecodeME, the largest ever ME/CFS DNA study – DecodeME