The state of ME/CFS research in Australia and awareness are the subjects of this excellent article by Amanda Cox.
Source: Helping doctors diagnose an invisible illness | ANU Science, Health & Medicine
Health
Dr. Ron Davis Gives an Update on ME/CFS Research Into IDO2 Mutation
The Metabolic Trap could be caused by a IDO2 mutation found in ME patients, Dr. Davis discusses the possible implications of this research.
Chronic Fatigue Syndrome: Progress Toward Diagnosis and Treatment, Finally?
A great review of recent research around ME/CFS by Dr. Henry Miller, Senior Fellow at the Pacific Research Institute.
Dr. Mike Snyder Presents Big Data for Better Health – 2019 Stanford ME/CFS Symposium
Dr. Mike Snyder demonstrates how big data and wearable technology can lead to better health.
Red Blood Cell Deformability as a Marker – 2019 Stanford ME/CFS Symposium
Dr. Juan Santiago presents his fascinating work on developing an ME/CFS bio-marker from observed Red Blood Cell Deformability.
Dr. Robert Phair – The genetics of the Metabolic Trap – 2019 Stanford ME/CFS Symposium
Dr. Robert Phair presents an update on his theories and findings around Metabolic Trap research.
NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS
On March 15-16, leading ME/CFS expert clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The Open Medicine Foundation was in attendance and has made available a document drafted by the participants that should prove indispensable to clinicians and patients alike:
The basics of diagnosis and management of ME/CFS.
Source: NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS | Open Medicine Foundation
Third Annual Working Group Meeting on the Molecular Basis of ME/CFS @ Stanford
Director of Scientific and Medical Outreach, Jaime Seltzer of #MEAction, gave a talk on Wednesday during a session on “Big Data and ME/CFS” at Stanford University as part of the Third Annual Working Group Meeting on the Molecular Basis of ME/CFS sponsored by the Open Medicine Foundation.
On Saturday, September 7th, from 9 A.M. PDT the proceedings will be open to the public via live stream here.
For additional highlights of the conference proceedings please follow this twitter link.
Update: Day three ended with dinner for the scientists and the OMF at Ron Davis and Janet Dafoe’s home.
Source: Patient Registry is the Key to Achieving Big Data for M.E. – #MEAction
How Are Chronic Illness and Trauma Related?
Recent studies continue to point to inflammation as being a product of stress. This article explores connecting trauma and chronic illness. You will also find links to related articles.
Source: How Are Chronic Illness and Trauma Related? | The Mighty
Incline Village Revisited
Patients moved from all over the country to Incline Village, Nevada, for an experimental drug. Then the drug disappeared.
Source: A Town for People with Chronic-Fatigue Syndrome -The New Yorker