A great review of recent research around ME/CFS by Dr. Henry Miller, Senior Fellow at the Pacific Research Institute.
Science
Dr. Mike Snyder Presents Big Data for Better Health – 2019 Stanford ME/CFS Symposium
Dr. Mike Snyder demonstrates how big data and wearable technology can lead to better health.
Red Blood Cell Deformability as a Marker – 2019 Stanford ME/CFS Symposium
Dr. Juan Santiago presents his fascinating work on developing an ME/CFS bio-marker from observed Red Blood Cell Deformability.
Dr. Robert Phair – The genetics of the Metabolic Trap – 2019 Stanford ME/CFS Symposium
Dr. Robert Phair presents an update on his theories and findings around Metabolic Trap research.
Third Annual Working Group Meeting on the Molecular Basis of ME/CFS @ Stanford
Director of Scientific and Medical Outreach, Jaime Seltzer of #MEAction, gave a talk on Wednesday during a session on “Big Data and ME/CFS” at Stanford University as part of the Third Annual Working Group Meeting on the Molecular Basis of ME/CFS sponsored by the Open Medicine Foundation.
On Saturday, September 7th, from 9 A.M. PDT the proceedings will be open to the public via live stream here.
For additional highlights of the conference proceedings please follow this twitter link.
Update: Day three ended with dinner for the scientists and the OMF at Ron Davis and Janet Dafoe’s home.
Source: Patient Registry is the Key to Achieving Big Data for M.E. – #MEAction
Cortene to Move Forward on New Drug for ME/CFS
After a promising small trial of Cortene’s new experimental drug CT38, funds are being raised for a phase 2 trial. CT38 is believed to work by effectively reducing the amount of cortisol released by the adrenal glands through upregulation of stress receptors.
Source: Cortene to Move Forward on New Drug for Chronic Fatigue Syndrome (ME/CFS) – Health Rising
Human Genome Project Pioneer Seeks Cure for ME/CFS to Save His Own Son
CNN profiles Stanford researcher Ron Davis and his efforts to help his son Whitney.
Source: Human Genome Project pioneer seeks cure for chronic fatigue syndrome to save his own son – CNN
Stanford Team Develops Experimental Test to Detect ME/CFS
Known as a “nanoneedle,” the new device picks up on certain changes in electrical signals to identify people with ME/CFS. Read the official press release here.
Source: Experimental test may help confirm cases of chronic fatigue syndrome – STAT News
Brain Inflammation in ME/CFS – Jared Younger
Jared Younger is exploring the use of specialized MRI scans to detect neuroinflammation in ME/CFS patients.
Linked here is an excellent article on Yasuhito Nakatomi and Jarred Younger’s research into neuroinflammation.
‘Mono’ Virus Linked to Serious Diseases
Cincinnati Children’s researchers made a fundamental discovery last year about the Mono Virus (EBV).