 |
Wisdom 4 ME |
ME/CFS News & Advocacy |
Nearly six years ago, I was a 20-year-old student on summer break from Saint Anselm College, enjoying an adventurous season of New England hikes and road races. Then, I contracted an infection that irreversibly altered the trajectory of my life.
Source: Opinion: Raising awareness of Myalgic Encephalomyelitis
On Saturday, December 4th, David from the ME/CFS Phone Support Group will be co-hosting a Disability talk with Social Security Disability attorney Moselle Leland and Long-Term Private Disability and ERISA Attorney Andrew Kantor
This call will focus primarily on Social Security Disability for individuals with ME/CFS, as well as those with Long Haul Covid.
Saturday, December 4th, 6:30 PM – 8 PM Eastern
3:30 PM – 5 PM PacificU.S. Dial-In: (609) 746-1155; Access Code: 915110#
In September 2021 the NIH hosted a virtual workshop entitled Beyond the Symptom: Biology of Fatigue to bring together individuals who do research on fatigue, health care providers who see patients with fatigue, and individuals who have fatigue and patient advocates. This workshop was a joint workshop of the NIH Blueprint Neuroscience Research Program and the Sleep Research Society.
Researchers from Vall d’Hebron, the Universitat Autònoma de Barcelona (UAB) and the Universitat Politècnica de Catalunya BarcelonaTech (UPC) recently performed a study which assesses the use of a mobile app to explore heart rate variability (HRV) and whether it is associated with symptoms of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS).
The Biden administration moved Thursday to grant 323,000 people who are severely disabled automatic federal student loan forgiveness to the tune of $5.8 billion, setting the stage for reforms to a process that is widely criticized as cumbersome and onerous.
Source: Biden forgives student loans of severely disabled borrowers – The Washington Post
This article explores the connection between long Covid and possible co-infections such as EBV. In one study, over 73 percent of COVID-19 patients who were experiencing long Covid symptoms were also positive for EBV reactivation.
Source: Long COVID Might Be The Manifestation of a Different Virus Reawakened in The Body
Children like Will Grogan continue to suffer from debilitating fatigue and extreme cognitive impairment long after a Covid-19 infection. Medical science is still no closer to a solution.
Source: ‘This Is Really Scary’: Kids Struggle With Long Covid – The New York Times
How renowned scientist Ron Davis is fighting to cure his son’s chronic fatigue syndrome, and why COVID patients may benefit.
Source: A geneticist’s biggest challenge: Curing his own son | Health | Al Jazeera
Co-Principal Investigator Dr Luis Nacul, CureME Biobank, London School of Hygiene & Tropical Medicine, says: “Unlocking the genetic susceptibility to ME/CFS is a key part of understanding what causes ME/CFS and the disease mechanisms involved. This, in conjunction with other biomedical research into ME/CFS, should finally pave the way to better diagnosis and the development of specific treatments for this debilitating disease.”