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Wisdom 4 ME |
ME/CFS News & Advocacy |
Noting that studies indicated the virus is able to spread throughout the brain including the hypothalamus, Moldofsky proposed the virus had produced a chronic neuroinflammatory state affecting sleep, pain sensitivity and energy levels. That hypothesis, of course, is identical to similar ones proposed for ME/CFS and fibromyalgia.
Source: Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake? | simmaronresearch.com
“I’ve had ME/CFS for 13 years and have never said anything about it publicly. Everything that’s happening now made me want to say something about it — and about the people who were housebound long before COVID19” – Sarah Sweet
Source: I’ve been self-isolating (more or less) for 13 years. Here’s some advice | TVO.org
MEAction has put together a great COVID-19 resources page. This curated page is updated as new information becomes available.
Source: Covid-19 – #MEAction
Explore the worlds art & culture right from your home. Over 500 virtual museum tours are available plus so much more.
Source: Google Arts & Culture
Due to COVID-19 the Millions Missing 2020 Event will be completely virtual. The update read, “Our community has always had a strong, powerful, and supportive virtual presence. This event will be no different.”
The views expressed in this article are purely speculative, there are no known cases currently of ME/CFS being caused by COVID-19.
By not even discussing ME as another potential implication of coronavirus, it only adds to the unfolding calamity that the UK, and the planet, could be facing. And moreover, the public needs to be aware of this. Because potentially, for those that get sick with ME after coronavirus, there may be little support out there.
Source: The other potential coronavirus catastrophe no one is talking about | The Canary
Researchers at the Department of Energy’s Oak Ridge National Laboratory have used Summit, the world’s most powerful and smartest supercomputer, to identify 77 small-molecule drug compounds that might warrant further study in the fight against the SARS-CoV-2 coronavirus, which is responsible for the COVID-19 disease outbreak.
Source: Early research on existing drug compounds via supercomputing could combat coronavirus | ORNL
Kate has danced since she was a child and now teaches ballet from her wheelchair, and she was asked to show her skills in the ad. She describes herself as an ambulatory wheelchair user, which means that she is able to take some steps but needs her wheelchair to help ease fatigue and pain.
Source: Woman with ME models and dances with her wheelchair in George at Asda ad | Metro News
A study by researchers at DePaul University, published in 2019 in Health Care for Women International, surveyed 541 people with ME/CFS and found that 89% had experienced a dismissive attitude from a healthcare provider. People with the condition often encounter insensitivity, inappropriate beliefs about causes, inappropriate treatments, disbelief and a general lack of knowledge, the study says. Because ME/CFS symptoms overlap with so many other disorders, like depression, those who have the condition are often misdiagnosed.
Source: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed