Ron Davis, PhD, and Janet Dafoe, PhD, sit down to discuss how DNA & RNA technology is being developed and used at Stanford to advance research into ME/CFS, Long COVID, and related multi-system chronic complex diseases (msCCD). This technology is being developed in partnership with Peidong Shen, PhD.
Ron Davis Updates on the Metabolic Trap Hypothesis
This video is an update about the Metabolic Trap Hypothesis, it is especially exciting because Ron Davis has made significant progress and wanted to update the ME/CFS community. This work was initiated by Robert Phair with funding from OMF.
Vaccination Nation: The not-so-long odds of long COVID | 1A
“Many patients are coming back to the clinic a year and a half after having COVID-19 and some of them are developing onset diabetes and heart disease. We lump all of these experiences under long COVID but it’s unlikely to be just one thing,” – Dr. Ziyad Al-Aliy
We assemble a panel of experts to discuss long COVID and ask listeners to share their experiences.
Source: Vaccination Nation: The not-so-long odds of long COVID | 1A
Opinion: Raising awareness of Myalgic Encephalomyelitis
Nearly six years ago, I was a 20-year-old student on summer break from Saint Anselm College, enjoying an adventurous season of New England hikes and road races. Then, I contracted an infection that irreversibly altered the trajectory of my life.
Source: Opinion: Raising awareness of Myalgic Encephalomyelitis
Navigating Public and Private Disability Insurance with ME/CFS (Update)
On Saturday, December 4th, David from the ME/CFS Phone Support Group will be co-hosting a Disability talk with Social Security Disability attorney Moselle Leland and Long-Term Private Disability and ERISA Attorney Andrew Kantor
This call will focus primarily on Social Security Disability for individuals with ME/CFS, as well as those with Long Haul Covid.
Saturday, December 4th, 6:30 PM – 8 PM Eastern
3:30 PM – 5 PM PacificU.S. Dial-In: (609) 746-1155; Access Code: 915110#
NIH VideoCast – Beyond the Symptom: The Biology of Fatigue
In September 2021 the NIH hosted a virtual workshop entitled Beyond the Symptom: Biology of Fatigue to bring together individuals who do research on fatigue, health care providers who see patients with fatigue, and individuals who have fatigue and patient advocates. This workshop was a joint workshop of the NIH Blueprint Neuroscience Research Program and the Sleep Research Society.
The entirety of the workshop can be streamed on the links below:
NIH VideoCast – Beyond the Symptom: The Biology of Fatigue (Day 1)
NIH VideoCast – Beyond the Symptom: The Biology of Fatigue (Day 2)
Wearable Tech Study Measures Heart Rate Variability to Gauge Severity of Chronic Illness
Researchers from Vall d’Hebron, the Universitat Autònoma de Barcelona (UAB) and the Universitat Politècnica de Catalunya BarcelonaTech (UPC) recently performed a study which assesses the use of a mobile app to explore heart rate variability (HRV) and whether it is associated with symptoms of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS).
Continue reading →
Biden Forgives Student Loans of Severely Disabled Borrowers
The Biden administration moved Thursday to grant 323,000 people who are severely disabled automatic federal student loan forgiveness to the tune of $5.8 billion, setting the stage for reforms to a process that is widely criticized as cumbersome and onerous.
Source: Biden forgives student loans of severely disabled borrowers – The Washington Post
Long COVID Might Be the Manifestation of a Different Virus Reawakened in the Body
This article explores the connection between long Covid and possible co-infections such as EBV. In one study, over 73 percent of COVID-19 patients who were experiencing long Covid symptoms were also positive for EBV reactivation.
Source: Long COVID Might Be The Manifestation of a Different Virus Reawakened in The Body
‘This Is Really Scary’: Kids Struggle With Long Covid
Children like Will Grogan continue to suffer from debilitating fatigue and extreme cognitive impairment long after a Covid-19 infection. Medical science is still no closer to a solution.
Source: ‘This Is Really Scary’: Kids Struggle With Long Covid – The New York Times