Belle and Sebastian artfully layers music with lyrics from fans on their thoughts and feelings about being quarantined at home alone to create an inspired song they call Protecting the Hive. The first release from this series is narrated by bandleader and OMF Ambassador Stuart Murdoch and friend Alessandra Lupo, set to an aerial view of Glasgow in its current lockdown state, shot by Kenny MacLeod.
Presented by Solve ME on April 20, 2020, this online education workshop includes a conversation between legal and medical experts in the field as they share their advice on applying, appealing, and documenting your case for disability insurance with ME/CFS. Board Certified Patient Advocate, Sharon Stevenson, DVM, PhD, moderates with roundtable speakers: Lucinda Bateman, MD (Bateman Horne Center), Christopher Snell, PhD (Workwell Foundation) and Moselle C. Leland (Law Offices of Judith S. Leland).
Solve ME announced: “In our new digital format, we’ve created a video to replace our printed congressional educational materials. Share this video with your Representatives to inform them of important ME/CFS needs.”
Share this video with your local state representatives this week and help make a difference!
The ME/CFS support group currently meets virtually every third Sunday of the month at 1PM.
This month’s topic: “Having ME/CFS can be an alienating and isolating experience even under the best conditions, and during these times of social distancing perhaps some of you may find value in checking out the Zoom meeting on Sunday.”
Those interested in attending can email: Monica Z email@example.com
Hillenbrand, who lives in Oregon, discussed her ongoing experience with coronavirus. “Your airways are so dramatically inflamed that your lungs get stiff and they can’t accept much oxygen. And they start basically closing themselves off.” She described it as, “like I was breathing through gauze”
Noting that studies indicated the virus is able to spread throughout the brain including the hypothalamus, Moldofsky proposed the virus had produced a chronic neuroinflammatory state affecting sleep, pain sensitivity and energy levels. That hypothesis, of course, is identical to similar ones proposed for ME/CFS and fibromyalgia.
Until three or four years ago conditions like ME/CFS or Fibromyalgia were not recognized by the rules governing disability in Japan. It is a little known fact that the date of the first doctors visit can be the onset date, even if there was not a clear diagnosis for the disability. Even though the disability rules have changed in Japan, people with an ME/CFS diagnosis are still at a disadvantage. Like in the US, being aware of the nuances of the rules is the only way to even the odds.
“I’ve had ME/CFS for 13 years and have never said anything about it publicly. Everything that’s happening now made me want to say something about it — and about the people who were housebound long before COVID19” – Sarah Sweet
MEAction has put together a great COVID-19 resources page. This curated page is updated as new information becomes available.
Source: Covid-19 – #MEAction
Explore the worlds art & culture right from your home. Over 500 virtual museum tours are available plus so much more.
Source: Google Arts & Culture