For the past several years, Deborah Smith has taken a less active role in her family members’ lives due to a draining, mysterious biological disease. Smith suffers from myalgic encephalomyelitis chronic fatigue syndrome, an illness without a known cause or cure.
In this video from early April Dr. Komaroff presents an ME/CFS summary to the NiH.
On the link below Dr. Anthony Komaroff shares a brief summary of the state of current ME/CFS research.
Singer-songwriter Alice Ella describes the joy of escaping in her new single Somewhere Else.
Researchers have discovered the pharmacological drug, Naltrexone, significantly restored the function of faulty receptors associated with myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome (ME/CFS). The study can be found here.
There’s new evidence that mind-body interventions can help reduce pain in people who have been taking prescription opioids — and lead to reductions in the drug’s dose.
Lena Dunham creates awareness of EDS on Instagram.
Ana shares her thoughts and feelings for those that do not not understand chronic illness.
Source: I’m Angry – Ana Harris Writes
Marie-Josée Ménard, a teacher in Montreal, started experiencing symptoms of ME/CFS in 2010. At the time, her doctor concluded it was severe depression.
A network of Canadian scientists is trying to make up for lost time in the search for a standard diagnostic test and treatment for a debilitating, poorly understood disease that had long been dismissed as a psychological illness.
Introducing Jacqueline Ko, OMF and OMF Canada Ambassador, she is a multi-award-winning Canadian performer, producer, and disability advocate. She is known for her roles in opera, theatre, musical theatre and film, and is also the founding artistic director of Opera Mariposa, a Vancouver-based performing arts company that showcases opera’s rising stars.
“It is a tremendous injustice, as we all realize the imbalance of access to proper patient care for many patients with ME/CFS, especially African-Americans and Hispanics. The voices of these communities are unheard, ignored and neglected, and most people are unaware of what they have, and most doctors do not even acknowledge or treat the symptoms of this horrific disease,” Linda Tannenbaum said in a statement.