A great review of recent research around ME/CFS by Dr. Henry Miller, Senior Fellow at the Pacific Research Institute.
Technology
Dr. Mike Snyder Presents Big Data for Better Health – 2019 Stanford ME/CFS Symposium
Dr. Mike Snyder demonstrates how big data and wearable technology can lead to better health.
Red Blood Cell Deformability as a Marker – 2019 Stanford ME/CFS Symposium
Dr. Juan Santiago presents his fascinating work on developing an ME/CFS bio-marker from observed Red Blood Cell Deformability.
Dr. Robert Phair – The genetics of the Metabolic Trap – 2019 Stanford ME/CFS Symposium
Dr. Robert Phair presents an update on his theories and findings around Metabolic Trap research.
Pivotal Moment for ME/CFS at the NIH?
One year to the day of the Report’s initiation, Stephen Roberds, the Chair of the ME/CFS Working Group and an NANDSC Council member, stepped up before the National Advisory Council (NANDSC), the Council through which all NINDS grants, initiatives and projects must pass. Before becoming the group’s chair, Roberds knew nothing about chronic fatigue syndrome (ME/CFS), but a year working on the report has convinced him it is a serious and neglected disease. Follow the source link below for details and a link to the report.
Source: Did a Pivotal Moment For ME/CFS Just Happen? – Health Rising
The Harvard ME/CFS Collaboration
The 2019 inaugural Harvard ME/CFS Collaboration Symposium group photo.
Harvard today launched a new informative ME/CFS website. It is described as part of a new collaborative initiative at the Harvard Medical School Institutions committed to the higher understanding and discovery of new treatments for ME/CFS.
Source: The Harvard ME/CFS Collaboration at Harvard-Affiliated Hospitals
Third Annual Working Group Meeting on the Molecular Basis of ME/CFS @ Stanford
Director of Scientific and Medical Outreach, Jaime Seltzer of #MEAction, gave a talk on Wednesday during a session on “Big Data and ME/CFS” at Stanford University as part of the Third Annual Working Group Meeting on the Molecular Basis of ME/CFS sponsored by the Open Medicine Foundation.
On Saturday, September 7th, from 9 A.M. PDT the proceedings will be open to the public via live stream here.
For additional highlights of the conference proceedings please follow this twitter link.
Update: Day three ended with dinner for the scientists and the OMF at Ron Davis and Janet Dafoe’s home.
Source: Patient Registry is the Key to Achieving Big Data for M.E. – #MEAction
Using a Heart Rate Monitor To Prevent Post-Exertional Malaise in ME/CFS
Discover how to prevent post-exertional malaise by learning to use a heart rate monitor. This article is a must read for those interested in pacing.
Source: Using a Heart Rate Monitor To Prevent Post-Exertional Malaise in ME/CFS – Prohealth
Stanford Team Develops Experimental Test to Detect ME/CFS
Known as a “nanoneedle,” the new device picks up on certain changes in electrical signals to identify people with ME/CFS. Read the official press release here.
Source: Experimental test may help confirm cases of chronic fatigue syndrome – STAT News
Brain Inflammation in ME/CFS – Jared Younger
Jared Younger is exploring the use of specialized MRI scans to detect neuroinflammation in ME/CFS patients.
Linked here is an excellent article on Yasuhito Nakatomi and Jarred Younger’s research into neuroinflammation.