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Wisdom 4 ME |
ME/CFS News & Advocacy |
Michael Sheldon of Cortez, Colo. suffered severe injuries after his road-paving truck flipped on the job in 2006, hurling him headfirst toward a mound of boulders. He waited 14 years for disability benefits. (Corey Robinson for The Washington Post/For The Washington Post)
Ron Davis, PhD, and Janet Dafoe, PhD, sit down to discuss how DNA & RNA technology is being developed and used at Stanford to advance research into ME/CFS, Long COVID, and related multi-system chronic complex diseases (msCCD). This technology is being developed in partnership with Peidong Shen, PhD.
This video is an update about the Metabolic Trap Hypothesis, it is especially exciting because Ron Davis has made significant progress and wanted to update the ME/CFS community. This work was initiated by Robert Phair with funding from OMF.
Researchers from Vall d’Hebron, the Universitat Autònoma de Barcelona (UAB) and the Universitat Politècnica de Catalunya BarcelonaTech (UPC) recently performed a study which assesses the use of a mobile app to explore heart rate variability (HRV) and whether it is associated with symptoms of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS).
How renowned scientist Ron Davis is fighting to cure his son’s chronic fatigue syndrome, and why COVID patients may benefit.
Source: A geneticist’s biggest challenge: Curing his own son | Health | Al Jazeera
“These findings are important because they show for the first time that there is an antiviral activity in the serum of patients with ME/CFS that is tightly associated with an activity that fragments the mitochondrial network and decreases cellular energy (ATP) production,” said Robert Naviaux, MD, PhD
“This paper will be a paradigm shift in our understanding of potential infectious causes behind ME/CFS. Human herpesvirus 6 and HHV-7 have long been thought to play a role in this disease, but there was hardly any causative mechanism known before,” said senior co-author Bhupesh K. Prusty, PhD.
Source: For ME/CFS Patients, Viral Immunities Come at a Devastating, Lifelong Cost
Researchers at the Department of Energy’s Oak Ridge National Laboratory have used Summit, the world’s most powerful and smartest supercomputer, to identify 77 small-molecule drug compounds that might warrant further study in the fight against the SARS-CoV-2 coronavirus, which is responsible for the COVID-19 disease outbreak.
Source: Early research on existing drug compounds via supercomputing could combat coronavirus | ORNL
Introducing Jacqueline Ko, OMF and OMF Canada Ambassador, she is a multi-award-winning Canadian performer, producer, and disability advocate. She is known for her roles in opera, theatre, musical theatre and film, and is also the founding artistic director of Opera Mariposa, a Vancouver-based performing arts company that showcases opera’s rising stars.
The Third Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by OMF, took place on September 7, 2019 at Stanford University. It brought together hundreds of researchers, clinicians, patients, caregivers, families, and advocates, and thousands more by livestream.
The Metabolic Trap could be caused by a IDO2 mutation found in ME patients, Dr. Davis discusses the possible implications of this research.