Explore the worlds art & culture right from your home. Over 500 virtual museum tours are available plus so much more.
Source: Google Arts & Culture
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May 12th Millions Missing 2020 Event Made Virtual
Due to COVID-19 the Millions Missing 2020 Event will be completely virtual. The update read, “Our community has always had a strong, powerful, and supportive virtual presence. This event will be no different.”
Woman with ME Models and Dances with Her Wheelchair
Kate has danced since she was a child and now teaches ballet from her wheelchair, and she was asked to show her skills in the ad. She describes herself as an ambulatory wheelchair user, which means that she is able to take some steps but needs her wheelchair to help ease fatigue and pain.
Source: Woman with ME models and dances with her wheelchair in George at Asda ad | Metro News
ME/CFS is Debilitating but Often Dismissed
A study by researchers at DePaul University, published in 2019 in Health Care for Women International, surveyed 541 people with ME/CFS and found that 89% had experienced a dismissive attitude from a healthcare provider. People with the condition often encounter insensitivity, inappropriate beliefs about causes, inappropriate treatments, disbelief and a general lack of knowledge, the study says. Because ME/CFS symptoms overlap with so many other disorders, like depression, those who have the condition are often misdiagnosed.
Source: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed
A Story of One Mans Struggle with ME/CFS
The catastrophic collapse of Tony Wallace’s life began slowly and silently.
An episode of flu. A persistent illness. A feeling of fatigue. A sense something was not so much wrong, as not quite right.
Patients Push Limits for Clues to ME/CFS at NIH
The NIH study is focusing on people who came down with the disease after an infection, of any sort, within five years. That initial infection is long gone but maybe, the body’s normal reactions to illness went into a destructive tailspin. Nearly 500 patients have called seeking to enroll in NIH’s study that is putting a few dozen under the microscope, with a barrage of sophisticated tests few hospitals can offer under one roof. “The ignorance about the condition just vastly dwarfs what we know about it,” said Dr. Walter Koroshetz, director of NIH’s National Institute for Neurological Disorders and Stroke, which is leading the research.
Source: Patients push limits for clues to chronic fatigue syndrome – STAT
Cannabis and ME/CFS
It’s been almost fifteen years since I was taken down by a mystery illness. These days I am functioning at about 80 percent of my physiological capacity – and that feels like remission to me. I manage my health by eating a mostly plant-based diet, exercise, stress reduction, some supplements, and daily dosing with a CBD-rich tincture, with occasional THC-rich cannabis at night.
5 Stages Experienced by Those with Chronic Illness
Not everyone will go through these stages in the same way or in the same order that I have, but I’m confident that this list will sound familiar, both to those who are chronically ill and to those who care for them (if the former are fortunate enough to have the latter—I recognize that not everyone is).
Source: 5 Stages Experienced by Those with Chronic Illness | Psychology Today
How Yukey Passed His English Proficiency Exam While Coping with ME
“If you have moderate or severe ME, it will take considerable effort and thorough preparation just to get out of your house to go see your doctor. This time, however, it was not just getting out of my house in northern Ibaraki, but I had to travel all the way to Tokyo to take the Eiken Grade 1 or the uppermost level of the English proficiency test in Japan”
Source: How I Prepared for an English Proficiency Test in Tokyo as an ME patient