‘Seabiscuit’ Author Laura Hillenbrand on Coronavirus Symptoms

Hillenbrand, who lives in Oregon, discussed her ongoing experience with coronavirus. “Your airways are so dramatically inflamed that your lungs get stiff and they can’t accept much oxygen. And they start basically closing themselves off.” She described it as, “like I was breathing through gauze”

Source: ‘Seabiscuit’ author Laura Hillenbrand on coronavirus symptoms: It felt ‘like I was breathing through gauze’ – oregonlive.com

People with ME/CFS Share What it’s Really Like

ME/CFS patients in the UK share their stories. A survey in the UK carried out by the ME Association in 2016 found that 46% of patients thought that the care provided by their GP for CFS was “poor” or “dreadful.” Some 18% had no contact with their GP at all as they found they made their illness worse by not taking them seriously.

Source: People with Chronic Fatigue Syndrome/ME share what it’s really like – Insider

ME/CFS is Debilitating but Often Dismissed

A study by researchers at DePaul University, published in 2019 in Health Care for Women International, surveyed 541 people with ME/CFS and found that 89% had experienced a dismissive attitude from a healthcare provider. People with the condition often encounter insensitivity, inappropriate beliefs about causes, inappropriate treatments, disbelief and a general lack of knowledge, the study says. Because ME/CFS symptoms overlap with so many other disorders, like depression, those who have the condition are often misdiagnosed.

Source: Chronic Fatigue Syndrome Is Debilitating but Often Dismissed

Patients Push Limits for Clues to ME/CFS at NIH

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The NIH study is focusing on people who came down with the disease after an infection, of any sort, within five years. That initial infection is long gone but maybe, the body’s normal reactions to illness went into a destructive tailspin. Nearly 500 patients have called seeking to enroll in NIH’s study that is putting a few dozen under the microscope, with a barrage of sophisticated tests few hospitals can offer under one roof. “The ignorance about the condition just vastly dwarfs what we know about it,” said Dr. Walter Koroshetz, director of NIH’s National Institute for Neurological Disorders and Stroke, which is leading the research.

Source: Patients push limits for clues to chronic fatigue syndrome – STAT