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Wisdom 4 ME |
ME/CFS News & Advocacy |
It is simply a self-management tool that can help you better cope with living with ME/CFS. Utilizing the energy envelope will enable you to live a more balanced life by helping to prevent relapses. As an added bonus, you may find that over time your available energy supply will gradually increase, giving you a bigger energy envelope to work with.
Source: The Energy Envelope Theory: An Effective Self-Management Tool for ME/CFS – Prohealth
After a promising small trial of Cortene’s new experimental drug CT38, funds are being raised for a phase 2 trial. CT38 is believed to work by effectively reducing the amount of cortisol released by the adrenal glands through upregulation of stress receptors.
Source: Cortene to Move Forward on New Drug for Chronic Fatigue Syndrome (ME/CFS) – Health Rising
A unique and up-close opportunity to learn from and interact with these world-class scientists. Visit the link below for official details and sign up for the live stream of the event on Saturday, September 7th, 2019. The agenda is available here.
Source: Series written by Jennifer Brea – MediumJen Brea’s groundbreaking film Unrest brought much needed critical attention to ME/CFS. In a series of articles she writes about her path to recovery and a whole lot more.
Discover how to prevent post-exertional malaise by learning to use a heart rate monitor. This article is a must read for those interested in pacing.
Source: Using a Heart Rate Monitor To Prevent Post-Exertional Malaise in ME/CFS – Prohealth
“Kyle, a high achiever who loves playing basketball, is looking the make a good impression on the scout coming to school. Will he be able to make it?”
The purpose of this project is to raise awareness of ME/CFS in Japan, by sending out copies of the manga “One Day Suddenly I Got Chronic Fatigue Syndrome” to health officials. The organizers in collaboration with the author of the manga, Ms. Yuari, need to raise 2 million yen to be successful. Various rewards are being offered to supports, such as clear files and copies of the manga.
Update: On 08-16-2019 funding was successful!
In Cities across the world people showed their support in beautiful and moving #MillionsMissing advocacy events. Researchers, clinicians, and patients turned out to speak about the urgent need to address this crisis with real action. Members of Congress tweeted out their support for people with ME!
Source: We did it! This is what the #MillionsMissing Look Like. – #MEAction
CNN profiles Stanford researcher Ron Davis and his efforts to help his son Whitney.
Source: Human Genome Project pioneer seeks cure for chronic fatigue syndrome to save his own son – CNN
Known as a “nanoneedle,” the new device picks up on certain changes in electrical signals to identify people with ME/CFS. Read the official press release here.
Source: Experimental test may help confirm cases of chronic fatigue syndrome – STAT News