ME/CFS is Unreported in Minority Communities

Editor 10-05 Advocacy, People

“It is a tremendous injustice, as we all realize the imbalance of access to proper patient care for many patients with ME/CFS, especially African-Americans and Hispanics. The voices of these communities are unheard, ignored and neglected, and most people are unaware of what they have, and most doctors do not even acknowledge or treat the symptoms of this horrific disease,” Linda Tannenbaum said in a statement.

Source: Horrific Disease Ignored, Unreported in Minority Communities
– The White House Chronicle

It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS

Editor 10-03 Advocacy, Health

Hilda Bastian writes about the recent much anticipated change of conclusion to the Cochrane Review on Exercise and CFS.

Source: It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS | Absolutely Maybe

Community Symposium on the Molecular Basis of ME/CFS 2019

Editor 10-03 Advocacy, Events, Health, Science, Technology

The Third Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by OMF, took place on September 7, 2019 at Stanford University. It brought together hundreds of researchers, clinicians, patients, caregivers, families, and advocates, and thousands more by livestream.

Belle and Sebastian’s Stuart Murdoch: “I had all these ambitions and they died overnight”

Editor 10-01 Advocacy, People

Belle and Sebastian have soundtracked a new film by Simon Bird. The band’s lead singer explains how ME first inspired him to write music.

Source: Belle and Sebastian’s Stuart Murdoch: ‘I had all these ambitions and they died overnight’ | inews

Australian National University Promotes Awareness of ME/CFS

Editor 10-01 Advocacy, Health, Science

The state of ME/CFS research in Australia and awareness are the subjects of this excellent article by Amanda Cox.

Source: Helping doctors diagnose an invisible illness | ANU Science, Health & Medicine

Dr. Ron Davis Gives an Update on ME/CFS Research Into IDO2 Mutation

Editor 09-26 Health, Science, Technology

The Metabolic Trap could be caused by a IDO2 mutation found in ME patients, Dr. Davis discusses the possible implications of this research.

New Study Shows DNA is Held Together by Hydrophobic Forces

Editor 09-23 Science

Researchers at Chalmers University of Technology, Sweden, have disproved the prevailing theory of how DNA binds itself. It is not, as is generally believed, hydrogen bonds which bind together the two sides of the DNA structure. Instead, water is the key. The discovery opens doors for new understanding in research in medicine and life sciences. The findings are published in PNAS.

Source: DNA is held together by hydrophobic forces

Never Enough Hours in a Day With ME/CFS

Editor 09-20 People

Jody discusses how there just aren’t enough hours in the day for the person with ME/CFS and her concept of whitespace.

Source: Never Enough Hours in a Day With ME/CFS | Phoenix Rising ME / CFS Forums

Chronic Fatigue Syndrome: Progress Toward Diagnosis and Treatment, Finally?

Editor 09-18 Advocacy, Health, Science, Technology

A great review of recent research around ME/CFS by Dr. Henry Miller, Senior Fellow at the Pacific Research Institute.

Source: Chronic Fatigue Syndrome: Progress Toward Diagnosis and Treatment, Finally? | American Council on Science and Health

Dr. Mike Snyder Presents Big Data for Better Health – 2019 Stanford ME/CFS Symposium

Editor 09-18 Events, Health, Science, Technology

Dr. Mike Snyder demonstrates how big data and wearable technology can lead to better health.

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