Ana shares her thoughts and feelings for those that do not not understand chronic illness.
Source: I’m Angry – Ana Harris Writes
Advocacy
Serious Research Begins on Chronic Fatigue Syndrome in Canada
Marie-Josée Ménard, a teacher in Montreal, started experiencing symptoms of ME/CFS in 2010. At the time, her doctor concluded it was severe depression.
A network of Canadian scientists is trying to make up for lost time in the search for a standard diagnostic test and treatment for a debilitating, poorly understood disease that had long been dismissed as a psychological illness.
Source: After long-awaited recognition, serious research begins on chronic fatigue syndrome | CBC News
ME/CFS is Unreported in Minority Communities
“It is a tremendous injustice, as we all realize the imbalance of access to proper patient care for many patients with ME/CFS, especially African-Americans and Hispanics. The voices of these communities are unheard, ignored and neglected, and most people are unaware of what they have, and most doctors do not even acknowledge or treat the symptoms of this horrific disease,” Linda Tannenbaum said in a statement.
Source: Horrific Disease Ignored, Unreported in Minority Communities
– The White House Chronicle
It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS
Hilda Bastian writes about the recent much anticipated change of conclusion to the Cochrane Review on Exercise and CFS.
Source: It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS | Absolutely Maybe
Community Symposium on the Molecular Basis of ME/CFS 2019
The Third Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by OMF, took place on September 7, 2019 at Stanford University. It brought together hundreds of researchers, clinicians, patients, caregivers, families, and advocates, and thousands more by livestream.
Belle and Sebastian’s Stuart Murdoch: “I had all these ambitions and they died overnight”
Belle and Sebastian have soundtracked a new film by Simon Bird. The band’s lead singer explains how ME first inspired him to write music.
Source: Belle and Sebastian’s Stuart Murdoch: ‘I had all these ambitions and they died overnight’ | inews
Australian National University Promotes Awareness of ME/CFS
The state of ME/CFS research in Australia and awareness are the subjects of this excellent article by Amanda Cox.
Source: Helping doctors diagnose an invisible illness | ANU Science, Health & Medicine
Chronic Fatigue Syndrome: Progress Toward Diagnosis and Treatment, Finally?
A great review of recent research around ME/CFS by Dr. Henry Miller, Senior Fellow at the Pacific Research Institute.
You Don’t Look Sick: Living with ME
A mom’s tale of her daily trials and tribulations while coping with ME. Her blog contains many useful tips for moms with ME.
Source: You Don’t Look Sick: living with myalgic encephalomyelitis (M.E.) | Metro News
NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS
On March 15-16, leading ME/CFS expert clinicians from across the United States gathered in Salt Lake City for the second annual ME/CFS Expert Clinician Summit. The Open Medicine Foundation was in attendance and has made available a document drafted by the participants that should prove indispensable to clinicians and patients alike:
The basics of diagnosis and management of ME/CFS.
Source: NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS | Open Medicine Foundation