Until three or four years ago conditions like ME/CFS or Fibromyalgia were not recognized by the rules governing disability in Japan. It is a little known fact that the date of the first doctors visit can be the onset date, even if there was not a clear diagnosis for the disability. Even though the disability rules have changed in Japan, people with an ME/CFS diagnosis are still at a disadvantage. Like in the US, being aware of the nuances of the rules is the only way to even the odds.
“I’ve had ME/CFS for 13 years and have never said anything about it publicly. Everything that’s happening now made me want to say something about it — and about the people who were housebound long before COVID19” – Sarah Sweet
MEAction has put together a great COVID-19 resources page. This curated page is updated as new information becomes available.
Source: Covid-19 – #MEAction
Explore the worlds art & culture right from your home. Over 500 virtual museum tours are available plus so much more.
Source: Google Arts & Culture
Due to COVID-19 the Millions Missing 2020 Event will be completely virtual. The update read, “Our community has always had a strong, powerful, and supportive virtual presence. This event will be no different.”
The views expressed in this article are purely speculative, there are no known cases currently of ME/CFS being caused by COVID-19.
By not discussing ME as another potential implication of coronavirus, it only adds to the unfolding calamity that the UK, and the planet, could be facing. And moreover, the public needs to be aware of this. Because potentially, for those that get sick with ME after coronavirus, there may be little support available.
Researchers at the Department of Energy’s Oak Ridge National Laboratory have used Summit, the world’s most powerful and smartest supercomputer, to identify 77 small-molecule drug compounds that might warrant further study in the fight against the SARS-CoV-2 coronavirus, which is responsible for the COVID-19 disease outbreak.
Kate has danced since she was a child and now teaches ballet from her wheelchair, and she was asked to show her skills in the ad. She describes herself as an ambulatory wheelchair user, which means that she is able to take some steps but needs her wheelchair to help ease fatigue and pain.
ME/CFS patients in the UK share their stories. A survey in the UK carried out by the ME Association in 2016 found that 46% of patients thought that the care provided by their GP for CFS was “poor” or “dreadful.” Some 18% had no contact with their GP at all as they found they made their illness worse by not taking them seriously.
A study by researchers at DePaul University, published in 2019 in Health Care for Women International, surveyed 541 people with ME/CFS and found that 89% had experienced a dismissive attitude from a healthcare provider. People with the condition often encounter insensitivity, inappropriate beliefs about causes, inappropriate treatments, disbelief and a general lack of knowledge, the study says. Because ME/CFS symptoms overlap with so many other disorders, like depression, those who have the condition are often misdiagnosed.