Belle and Sebastian’s ‘Protecting The Hive’

Belle and Sebastian artfully layers music with lyrics from fans on their thoughts and feelings about being quarantined at home alone to create an inspired song they call Protecting the Hive. The first release from this series is narrated by bandleader and OMF Ambassador Stuart Murdoch and friend Alessandra Lupo, set to an aerial view of Glasgow in its current lockdown state, shot by Kenny MacLeod.

How to Navigate Disability Insurance with ME/CFS

Presented by Solve ME on April 20, 2020, this online education workshop includes a conversation between legal and medical experts in the field as they share their advice on applying, appealing, and documenting your case for disability insurance with ME/CFS. Board Certified Patient Advocate, Sharon Stevenson, DVM, PhD, moderates with roundtable speakers: Lucinda Bateman, MD (Bateman Horne Center), Christopher Snell, PhD (Workwell Foundation) and Moselle C. Leland (Law Offices of Judith S. Leland).

Solve ME Advocacy Week 2020 Congressional Education Video

Solve ME announced: “In our new digital format, we’ve created a video to replace our printed congressional educational materials. Share this video with your Representatives to inform them of important ME/CFS needs.”

Share this video with your local state representatives this week and help make a difference!

Bay Area CFS Group Meeting Virtually Every Third Sunday

The ME/CFS support group currently meets virtually every third Sunday of the month at 1PM.

This month’s topic: “Having ME/CFS can be an alienating and isolating experience even under the best conditions, and during these times of social distancing perhaps some of you may find value in checking out the Zoom meeting on Sunday.”

Those interested in attending can email: Monica Z cfsbayarea@gmail.com

‘Seabiscuit’ Author Laura Hillenbrand on Coronavirus Symptoms

Hillenbrand, who lives in Oregon, discussed her ongoing experience with coronavirus. “Your airways are so dramatically inflamed that your lungs get stiff and they can’t accept much oxygen. And they start basically closing themselves off.” She described it as, “like I was breathing through gauze”

Source: ‘Seabiscuit’ author Laura Hillenbrand on coronavirus symptoms: It felt ‘like I was breathing through gauze’ – oregonlive.com

Will COVID-19 Lead to an Explosion of ME/CFS Cases?

Noting that studies indicated the virus is able to spread throughout the brain including the hypothalamus, Moldofsky proposed the virus had produced a chronic neuroinflammatory state affecting sleep, pain sensitivity and energy levels. That hypothesis, of course, is identical to similar ones proposed for ME/CFS and fibromyalgia.

Source: Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake? | simmaronresearch.com

Little Known Rules Make Disability Claims in Japan a Challenge.

Until three or four years ago conditions like ME/CFS or Fibromyalgia were not recognized by the rules governing disability in Japan. It is a little known fact that the date of the first doctors visit can be the onset date, even if there was not a clear diagnosis for the disability. Even though the disability rules have changed in Japan, people with an ME/CFS diagnosis are still at a disadvantage. Like in the US, being aware of the nuances of the rules is the only way to even the odds.

Source: 【FP解説】年金の「知らないと損!」 病名の確定診断日が初診日?(ファイナンシャルフィールド) – Yahoo!ニュース