People with ME/CFS Share What it’s Really Like Editor 02-20 Advocacy, People ME/CFS patients in the UK share their stories. A survey in the UK carried out by the ME Association in 2016 found that 46% of patients thought that the care provided by their GP for CFS was “poor” or “dreadful.” Some 18% had no contact with their GP at all as they found they made their illness worse by not taking them seriously. Source: People with Chronic Fatigue Syndrome/ME share what it’s really like – Insider